NEWS

2020

2018

Informative Guide for People with Rare Disease and their Caregivers


The Portuguese association Raríssimas together with Núcleo de Estudos de Doenças Raras da Sociedade Portuguesa de Medicina Interna elaborated an Informative Guide for People with Rare Disease and their Caregivers (please note this document is available only in Portuguese).

This is an informative and guiding document for patients with rare diseases in need of special care, and their caregivers.